A baby is born and everyone is excited. Somehow as time goes along one
or more members of the family start feeling that something, maybe, just maybe,
something is just not quite right. This sweet baby is not developing,
reacting, and maturing quite like other babies the same age. Each family
travels that journey down their own particular path. Some wind up and down
hills, in and out of tunnels, round and about each and every obstacle that can
be found while others take a more direct route ... to where? Some find
their journey ends with a diagnosis of high functioning autism (HFA), pervasive
developmental disorder (PDD), nonverbal learning disorder (NLD), central
auditory processing disorder (CAPD), semantic pragmatic disorder, hyperlexia,
executive processing disorder (EPD), or maybe still another diagnosis.
This page will attempt to help families, educators, and friends along this
journey with some brief descriptions, but mainly links to good resources for
clinical information before you get an "official diagnosis" and also
some "down-to-earth" information for helping handle those day-to-day
issues of living with a special needs child with the characteristics of the
above-described disorders.
The first lap on this journey involves "what are the identifying issues
which might require seeking a professional diagnosis?" Tony Attwood
is considered one of the leading authorities when discussing Asperger Syndrome
and High Functioning Autism. His website
has a wealth of information and his books present even greater in-depth insight
into the world of autism. Take time to explore his website, especially the
recent research reports
Additional resources for other general diagnosis information are:
Now that the parents have a "diagnosis" ... .WHAT NEXT??? Where do
they go for support? What happens now? It depends on where you live and
the support systems available in your area as to what really happens at this
next step. For the benefit of those on the Internet who are interested in
more than just the Metro-Atlanta area the following links are provided:
By the time a child receives an Aspergers Syndrome or high functioning Autism
diagnosis they are usually in school although other forms of Autism may be
diagnosed earlier. Unfortunately, the entire school environment is not
very friendly, in general, for these children. There are exceptions, many
times girls with AS tend to find the academic part of the school environment
easier to "fit in" than their boy counterparts. They will both
experience many social difficulties which will only increase in complexity as
they get older and their classmates mature faster and seem to have insights that
the AS child never seems to "get." A good resource is to go to
join the yahoo group IEP_guide.
Here are some additional resources to help with those school years
challenges:
Even with an IEP and the best teachers in place, everything does not
always go the way we would like for these special children. What do we do
then? Many times we need to enlist the help of specialists like
occupational therapists, speech therapists, behavior therapists, psychologists,
psychiatrists, educational therapists and more specialists are identified every
day. The following resource list is given to assist you with your own
research, but not as any specific recommendation. Each child is an
individual and no medical or professional advice is intended to be provided from
this website.
Outside of the school environment, other life-long issues concern parents of
special needs children who will be growing up: employment , independent
living skills, and a means to support themselves if they are not able to be
gainfully employed are some of the major concerns. Here are some
websites to explore some options available to special needs individuals and
their caretakers at this time.
By the time you have had a chance to review these websites, you will have
learned just enough to know how little you really know about your child's future
and how much more there is to learn. On the bright side of things, you are
on a journey with your child. The journey can take many detours and if you
take the time to look through the eyes of your child, you will be amazed at the
new wonderful sights you will experience.