Autism Support Group of Cobb County

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Autism Journey

A baby is born and everyone is excited.  Somehow as time goes along one or more members of the family start feeling that something, maybe, just maybe, something is just not quite right.  This sweet baby is not developing, reacting, and maturing quite like other babies the same age.  Each family travels that journey down their own particular path.  Some wind up and down hills, in and out of tunnels, round and about each and every obstacle that can be found while others take a more direct route ... to where?  Some find their journey ends with a diagnosis of high functioning autism (HFA), pervasive developmental disorder (PDD), nonverbal learning disorder (NLD), central auditory processing disorder (CAPD), semantic pragmatic disorder, hyperlexia, executive processing disorder (EPD), or maybe still another diagnosis. 

This page will attempt to help families, educators, and friends along this journey with some brief descriptions, but mainly links to good resources for clinical information before you get an "official diagnosis" and also some "down-to-earth" information for helping handle those day-to-day issues of living with a special needs child with the characteristics of the above-described disorders.

The first lap on this journey involves "what are the identifying issues which might require seeking a professional diagnosis?"  Tony Attwood is considered one of the leading authorities when discussing Asperger Syndrome and High Functioning Autism.  His website has a wealth of information and his books present even greater in-depth insight into the world of autism.  Take time to explore his website, especially the recent research reports 

Additional resources for other general diagnosis information are:

National Autistic Society Online Asperger Syndrome Information and Support
Adult Diagnosis and the Aftermath Adults with an Autism Spectrum Disorder
Autism & Asperger Syndrome Do2Learn
Autism Symptoms Checklist e-Medicine Journal
Nonverbal Learning Disability Symptoms Nonverbal Learning Disorders Resources
Autism Speaks - Diagnosis First Signs - Early Intervention
Central Auditory Processing Disorders CAPD's Home Page
Terminology - Types of Learning Disorders (Warning this is hosted on Angelfire with popups) Executive Dysfunction
Autism Scale Quotient Autism Key

Now that the parents have a "diagnosis" ... .WHAT NEXT??? Where do they go for support? What happens now?  It depends on where you live and the support systems available in your area as to what really happens at this next step.  For the benefit of those on the Internet who are interested in more than just the Metro-Atlanta area the following links are provided:

Atlanta Alliance on Developmental Disabilities Autism Support Network
Autism Link Emory University (list of support groups for Georgia)
Your Little Professor ASPEN
Girls with Aspergers Syndrome Idaho  
Parents Helping Parents New England
Los Angeles, CA Special Olympics Georgia  
GA-Parent Network - Yahoo Group Valley Autism Support
Autism Society of America Babies Can't Wait/Early Intervention (Georgia)
Governor's Council on Developmental Disabilities Foggy Rock Support Group
Exceptional Parent Magazine Family Village, Global Community - Waisman Center
National Institute of Neurological Disorders & Stroke National Information Center for Children and Youth with Disabilities
Disability Rights Education ... Parent to Parent of Georgia, Inc.
Ascend - Exceptional Resources Stages Learning Materials

By the time a child receives an Aspergers Syndrome or high functioning Autism diagnosis they are usually in school although other forms of Autism may be diagnosed earlier.  Unfortunately, the entire school environment is not very friendly, in general, for these children.  There are exceptions, many times girls with AS tend to find the academic part of the school environment easier to "fit in" than their boy counterparts.  They will both experience many social difficulties which will only increase in complexity as they get older and their classmates mature faster and seem to have insights that the AS child never seems to "get."  A good resource is to go to join the yahoo group IEP_guide. Here are some additional resources to help with those school years challenges:

Baltimore Psych Georgia Cyber Academy
Proposed IEP Goals Implementation and review of IEP
Homework Blues Untangle Autism - IEP
Special Education Resources on the Internet Inclusion
Special Education News Teacher Stuff
American School Directory Educational Resources for the Differently Abled Child
The FAPE site Time4Learning - online curriculum
Georgia Project for Assistive Technology Special Needs Education
Homeschool Meet-up Groups Wrights' Law Advocacy
Georgia Advocacy Office Council for Learning Disabilities
Council for Exceptional Children Georgia PINES
Learning Disabilities Association of GA National Center for Learning Disabilities
International Dyslexia Association Child Learning Difficulties

  Even with an IEP and the best teachers in place, everything does not always go the way we would like for these special children.  What do we do then?  Many times we need to enlist the help of specialists like occupational therapists, speech therapists, behavior therapists, psychologists, psychiatrists, educational therapists and more specialists are identified every day.  The following resource list is given to assist you with your own research, but not as any specific recommendation.  Each child is an individual and no medical or professional advice is intended to be provided from this website.

Occupational Therapist.com Sensory Integration
Healing Thresholds Easter Seals
Marcus Institute Byonetics
United Cerebral Palsy of Georgia Institutes for the Achievement of Human Potential
Children's Therapy Works Applied Behavioral Analysis
Learning for Tomorrow Treatments and Approaches for Autism
Shepherd Center, Inc. LeKotek of Georgia
Children Special Services Applied Behavior Analysis
 

Outside of the school environment, other life-long issues concern parents of special needs children who will be growing up:  employment , independent living skills, and a means to support themselves if they are not able to be gainfully employed are some of the major concerns.  Here are some  websites to explore some options available to special needs individuals and their caretakers at this time.

Jewish Family & Career Services Roosevelt Warm Springs Institute for Rehab
US & Canada Independent Living Centers Directory Benefit Eligibility Screening Tool (BEST)
Developmental Disabilities & SS Autism Research
Improving School to Work Transition Sample IEP for child with Autism ... toward graduation
Autism & School to Work Transition SSI Work Incentives 
Life After High School 2/16/2006 Autism Support Resource List

By the time you have had a chance to review these websites, you will have learned just enough to know how little you really know about your child's future and how much more there is to learn.  On the bright side of things, you are on a journey with your child.  The journey can take many detours and if you take the time to look through the eyes of your child, you will be amazed at the new wonderful sights you will experience.

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